Tuesday, February 23, 2010
All Well
All is well at home with little Paton. We feel like we are beginning to get back into our "normal" schedules. The routine has been good for the whole family. Paton's shunt seems to be working well. The swelling on his back is much diminished, although it may take some cosmetic surgery in the future to finish correcting it. The kids are enjoying Paton. He got to be home in time to celebrate Charis' 4th birthday. We see the neurosurgeon this week, as well as Early Childhood Intervention.
Monday, February 15, 2010
Home at Last
We are home! We went in this morning, expecting that Paton would be released around 2 or 3. However, by the time the pediatric neurosurgeon came and gave us the green light, it was almost 8 PM. We are so, so glad to be all home together. The kids were very excited. We came home to an absolutely beautiful house, thanks to a few of the church ladies! And we are so thankful, too, to "Da" and "Aunt Terry" and others who've helped with the kids, and to all the many of you who've made such delicious meals for us. Thank you also, many friends and family, for the many prayers that went up on Paton's behalf. God has answered in some very specific ways. We rest content in Him. So, for now, good night.
Waiting
More waiting. Paton was scheduled to be released today, but he developed some sort of bowel issue. We are currently waiting for a pediatric surgeon to come take a look at it. We still hope to go home tonight. We'll see. Also, we got a name for the fluid-filled sack that kept growing on Paton's back. They call it a pseudo-myelomeningocele. It is basically a "pop-off valve" for the spinal fluid that would have built up in the head. Thankfully, since they placed the shunt the sack on the back has not continued to grow. It might actually have been a blessing, since it kept any pressure from being put on the brain.
Well, hopefully we'll all be at home together tonight!
Friday, February 12, 2010
Going Home
Paton's going home on Monday! We are so excited. He's clear of infection, and his shunt seems to be functioning at this point. The doctors are all pleased with his progress, and so are we. The bulge at his surgery site on his back is much, much smaller, and isn't continually filling up with spinal fluid.
Hannah so much enjoys her new little brother. She really wanted to stay with me at the hospital the other day to see him awake again and get to hold him, even though it meant sitting in the hospital ICU for about 5 hours. She entertained herself by reading, but was thrilled when Pate woke up. She really wanted to feed him and hold him. Here are a couple of pictures. She'll make a great mama some day.
God has been so good. We hope to be all together again in about 3 days!
Hannah so much enjoys her new little brother. She really wanted to stay with me at the hospital the other day to see him awake again and get to hold him, even though it meant sitting in the hospital ICU for about 5 hours. She entertained herself by reading, but was thrilled when Pate woke up. She really wanted to feed him and hold him. Here are a couple of pictures. She'll make a great mama some day.
God has been so good. We hope to be all together again in about 3 days!
Monday, February 8, 2010
Shunt Success, So Far
Paton's out of surgery, and doing pretty well. The neurosurgeon placed a "V-P Shunt" in the little fella. It runs from the back of the right side of his head (from the Ventricles) down into his abdominal cavity (the P-word which I can't remember at the moment). Hopefully the level of resistance in the shunt is less than the resistance in the pathway into the pocket on the back, so that it will not continue to fill up and then possibly put pressure on the brain. There is a fairly small but significant risk of infection (8%) with this surgery. There is also a possibility that the body will reject the shunt, as it might any foreign object in the body. We have a friend whose body rejected three different shunt attempts. However, at the moment the little fella's doing all right, and resting as long as mom is holding him. She doesn't mind. : ) We made a friend here who's baby also has a shunt, so the kids all got to see what it would be like. We have yet to come up with a good nickname for the little fella -- "little fella" might not seem quite right a few years from now. Yesterday the kids came up with "milkshake." Hannah is "cheeseburger", David's "chicken nugget," and Charis is "small fry." Not so sure those'll stick, either. We're just praying Pate Pate'll have a restful night tonight. Thanks again for all your prayers.
I Will Give Thee Rest
Little Pate Pate hasn't had anything to eat since midnight, and we were so concerned it'd be a miserable night and morning for him, as he was not taken into surgery until just 45 minutes ago, about 1 PM. But God answered the prayers of so many of you, and enabled him to rest some. We took turns being with him from about 3 AM on, and he slept off and on, but he really wasn't ever too fussy. Finally this morning, he drifted off into a nice snooze before they finally came to take him. This was so much more peaceful that we thought, and we can't help believing this was of the Lord. The Lord also gave us peace and has kept us feeling fairly rested.
Nice Visit Yesterday
We had a nice little Family Time yesterday afternoon. The kids all enjoyed their little brother. Surgery is scheduled today for around noon. Poor little fella hasn't gotten to eat since midnight! :(
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