Posts
We're still waiting to see about the shunt. The neurosurgeons are monitoring the back closely, which continues to grow larger and more filled with fluid. But the head looks really good so far. So we're waiting. One doctor said, "We should probably know one way or the other in a couple of days or so."
The doctors said the spina bifida was near the L4-L5 level (4th or 5th vertebrae in the lumbar region). That's fairly low, which is good. However, they've seen some limited movement in his upper legs, but almost no movement yet in his lower legs. So his function is basically consistent with an L3 lesion. Day by day, and with each passing moment, God gives grace. This is only the beginning of a long, long journey. But, we pray it will be a journey measured out by God's grace.
Our hearts go out to some dear friends who buried their newborn baby today. Karla was our ministry secretary, and their baby was due 2 days after Paton's C-section. The baby died Monday, and they buried her today. We cried when we first heard the news. We pray for them to come to know something more of Amazing Grace. We love you, Karla & Ernesto.
One last thing -- we have a friend named Scott who's been such a blessing. He was born with spina bifida some 40 (?) years ago. He's emailed a couple of times -- such encouragement, such an upbeat, positive testimony of God's goodness and grace. "The comfort wherewith we ourselves are comforted of God." Thanks, Scott.
Jen's staying here in the Ronald McDonald House tonight. I plan on going home to see the kids (& maybe help give Grandma a break). We'll update again when we know anything new. Good night.
Subscribe to:
Post Comments (Atom)
Thanks for the comment guys. I have been keeping you in constant prayer over the last few days. I have also taken the liberty of emailing a picture of Paton to several of my friends who also have spina bifida and we are all in agreement, he is SO cute! They all want me to pass along to you that they are keeping Paton in their prayers as well. All of us with spina bifida know the struggles Paton has had in his young life but we are also all aware of God's grace and His ability to see us all through whatever storms of life we face. Take care and God bless.
ReplyDelete