Monday, October 17, 2011
Dynamic Stander
Paton is getting around these days -- at least at the therapy center -- with the help of a "dynamic stander." It seems like he really enjoys it, though he does get a little frustrated at times. The plan is for him to use this while he develops the skills to stand upright for extended periods. It should help him acclimate to getting around in an upright position. Then later he'll transition to a "gait trainer" to help him try to take some steps upright.
Tuesday, August 16, 2011
The Bray Crew Aug 2011
Everybody is doing well. Paton's crawling around all over the place. And talking! He loves to listen to people intently and then copy words. He loves talking about dogs. He's supposed to stand some, but he doesn't like it much. Going to therapy once a week. We just love the little fella. Love the whole crew!
Friday, May 20, 2011
Thursday, March 24, 2011
Home Again
Paton is home again. He was released yesterday afternoon. They finally determined that the fever he's been running wasn't a sign of shunt malfunction. They did do some tests to make sure the shunt was working properly. They also feel better about the rate of flow. Paton's feeling much better today, and we are all glad to be back together!
Tuesday, March 22, 2011
Shunt Adjustment?
Sunday morning the little fella (though he's not quite so little any more!) seemed to be feeling pretty bad. He was listless and the surgery site on his back seemed to be a little puffier and a little redder. Our doctor told us we needed to take him to the ER at TX Childrens. So Jen left the morning service and spent the next 8 hours in the ER. Finally, they decided to admit him so they doctor on call Monday morning could take a look. They did CT brain scans to check for fluid build-up, body xrays to examine the entire length of the shunt, and multiple other tests, including taking blood samples. So Monday the docs decided that his shunt was not draining the fluid at the proper rate, so the adjusted it. This is a non-invasive procedure that involves the use of a magnetic "remote control" -- pretty cool. They kept him for observation all day Monday. However, he began running a fever Sunday night and it has yet to go away. The doctors also thought he was becoming a little dehydrated, so they've now (as of last night) put him on IV fluids. Today they said they are concerned that there might still be something wrong with the shunt. They're going to continue to observe -- if he begins to feel better, he'll be released. If he doesn't seem to improve, they may put a pick in the shunt in order to make sure it's working properly. So, thank you, friends and family, for your prayers. He's doing well. We just hope he can be out soon!
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